Improving disease knowledge in 6- to 10-year-olds with sickle cell disease: A quasi-experimental study.

BACKGROUND: Increasing knowledge and understanding of disease is known to improve outcomes in persons living with a chronic illness. In this paper, we aim to compare the disease knowledge of children with sickle cell disease (SCD), age 6-10 years, who received an intervention (an educational colouring book on SCD) geared towards improving disease knowledge, to those who did not received the colouring book. METHODS: A quasi-experimental study was conducted where disease knowledge was determined in 56 children who had received the colouring book and compared to 60 children who did not receive this intervention. RESULTS: The mean knowledge score was significantly higher in the intervention group (mean difference = 2.65; 95% CI [1.43, 3.86]), as well as in older children and in those in higher grades but there was no difference between sexes. In a multiple regression model (adjusted R2 : 0.39; p value < .001), knowledge score was significantly higher in those who received the intervention (ß: 2.62; 95% CI [1.48, 3.76]) while adjusting for age, gender, persons living at home, and the father's employment status. CONCLUSION: The study highlights that a simple, inexpensive (cost: US$1/book) child-friendly intervention can significantly improve knowledge about SCD even in young children. It also underlines various social factors that are associated with children's understanding of their disease.

Preliminary report on the validation of a questionnaire measuring patient satisfaction with services at the Sickle Cell Unit in Jamaica / Reporte preliminar sobre la validación de un cuestionario para medir la satisfacción de los pacientes con respecto a los servicios de la Unidad de Anemia Falciforme en Jamaica

OBJECTIVE: Patient satisfaction has become an increasingly important component of quality assessment. This cross-sectional study was conducted to assess the psychometric properties of a Patient Satisfaction Questionnaire modified for use in the Sickle Cell Unit, Jamaica. METHODS: A total of 85 persons were interviewed. Construct validity, including exploratory factor analysis and internal reliability were assessed. Data were analysed using SPSS (version 11.5 for Windows) and Intercooled STATA (version 8.2). RESULTS: The Patient Satisfaction Questionnaire modified for use in the Sickle Cell Unit demonstrated good internal reliability for the 'doctors', 'nurses', 'social worker' and 'facilities' subscales (Cronbach's a > 0.70). Exploratory factor analysis revealed only four of the seven 'specific' subscales retaining a single factor, namely the 'nurses', 'facilities', 'appointments'and 'social worker'subscales. Those who attended more frequently gave a statistically significant higher score for 'facilities' and lower score for 'nurses'. However there was no statistically significant difference in the mean scores by age, gender and genotype. The 'general satisfaction' subscale scores showed a significant positive correlation with scores for 'doctors', 'nurses', 'laboratory' and 'facilities' and 'appointments'. CONCLUSION: This preliminary report on the validation of the Patient Satisfaction Questionnaire modified for use in the Sickle Cell Unit reveals it has the potential for serving as a useful tool in the assessment ofpatient satisfaction among sickle cell patients. However, further work is necessary on the instrument.

OBJETIVO: La satisfacción del paciente se ha convertido en un componente cada vez más importante de la evaluación de la calidad. Este estudio transversal se llevó a cabo a fin de evaluar las propiedades psicométricas de una Cuestionario de Satisfacción del Cliente, modificado para su uso en la Unidad de Anemia Falciforme, Jamaica. MÉTODOS: Se entrevistó un total de 85 personas. Se evaluó la validez del constructo, incluyendo el análisis exploratorio de factores y la confiabilidad interna. Los datos fueron analizados utilizando el SPSS (versión 11.5 para Windows) e Intercooled STATA (versión 8.2). RESULTADOS: El Cuestionario de Satisfacción del Cliente para uso en la Unidad de Anemia Falciforme demostró buena confiabilidad interna para las subescalas de 'doctores', 'enfermeras', 'trabajadores sociales'e 'instalaciones'(Cronbach: a > 0.70). El análisis exploratorio de factores reveló solamente cuatro de las siete subescalas "específicas" que retienen un solo factor, a saber, "enfermeras", "instalaciones ", "citas " y "trabajadores sociales ". Aquellos que asistían con mayor frecuencia, arrojaron - desde el punto de vista de las estadísticas - una puntuación significativamente más alta para las "instalaciones", y una puntuación más bajas para las "enfermeras ". Sin embargo, no hubo diferencias estadísticas significativas en las puntuaciones promedio por edad, género o genotipo. Las puntuaciones de subescala de la "satisfacción general" mostraron una correlación significativamente positiva con respecto a las puntuaciones para "doctores", "enfermeras", "laboratorio" e "instalaciones, y "citas". CONCLUSIÓN: Este reporte preliminar sobre la validación del Cuestionario de Satisfacción del Paciente, modificado para su uso en la Unidad de Anemia Falciforme, revela que esta Unidad tiene el potencial necesario para servir como instrumento útil a fin de evaluar el grado de satisfacción del servicio entre los pacientes de anemia falciforme. No obstante, el instrumento requiere ulterior elaboración.

Preliminary report on the validation of a questionnaire measuring patient satisfaction with services at the sickle cell unit in Jamaica.

OBJECTIVE: Patient satisfaction has become an increasingly important component of quality assessment. This cross-sectional study was conducted to assess the psychometric properties of a Patient Satisfaction Questionnaire modified for use in the Sickle Cell Unit, Jamaica. METHODS: A total of 85 persons were interviewed. Construct validity, including exploratory factor analysis and internal reliability were assessed. Data were analysed using SPSS (version 11.5 for Windows) and Intercooled STATA (version 8.2). RESULTS: The Patient Satisfaction Questionnaire modified for use in the Sickle Cell Unit demonstrated good internal reliability for the 'doctors', 'nurses', 'social worker' and facilities' subscales (Cronbach's alpha > or = 0.70). Exploratory factor analysis revealed only four of the seven 'specific'subscales retaining a single factor, namely the 'nurses', 'facilities', 'appointments'and 'social worker' subscales. Those who attended more frequently gave a statistically significant higher score for facilities' and lower score for 'nurses'. However there was no statistically significant difference in the mean scores by age, gender and genotype. The 'general satisfaction' subscale scores showed a significant positive correlation with scores for 'doctors', 'nurses', 'laboratory'and facilities'and 'appointments'. CONCLUSION: This preliminary report on the validation of the Patient Satisfaction Questionnaire modified for use in the Sickle Cell Unit reveals it has the potential for serving as a useful tool in the assessment of patient satisfaction among sickle cell patients. However further work is necessary on the instrument.